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Joining a group

PATIENT JOINING A GROUP LARGE BUTTONWorking with patients and carers

We believe it is very important for patients and carers to be involved in decisions that are made about their care. By involving patients and carers in the guideline development process, we can identify their concerns and use their views to support findings from scientific research and the knowledge and experience of healthcare professionals.

Patients and carers can help the guideline development group understand what it is like to live with a medical condition and how different forms of treatment can affect their lives. Examples of the types of things we are interested in hearing about include:

  • what patients want from their treatment;
  • whether patients accept different treatments;
  • patients’ preferences; and
  • the needs of different groups of patients, for example in relation to their sex, age and ethnic background.

Patients and carers can also raise a wide range of other issues to make sure that the guideline development group considers the needs of everyone who is affected by a condition.

You can read more about joining a group in our leaflet (PDF).

Find out more about joining a guideline group by reading Helen’s story (PDF)/

Working with members of the public

Public partners represent patients and the public on SIGN Council.  SIGN Council members make decisions on how we plan to develop overall and play a vital role in topic selection and shaping our programme for developing guidelines.

Public partners are also involved in SIGN’s implementation and dissemination activities.  They help to raise awareness of guidelines and patient versions of guidelines with various stakeholders.  Find out more by reading one of our Awareness Volunteer’s story. (PDF)

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